Clinical Trial Details
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Phase N/AObservational
Patients' Experiences with Diagnosis, Treatment, and Survivorship of Extramammary Paget's Disease (EMPD)
Protocol: 2026P000569
Overview
Primary Objective:
- To inform patient-centered strategies for individuals with extramammary Paget's disease (EMPD) to reduce diagnostic and treatment care delays and identify ongoing survivorship care needs.
Secondary Objectives:
- Aim 1: To elicit rich illness narratives of patients with EMPD to understand symptom experience, illness narratives, and help-seeking.
- Aim 2: To explore unmet survivorship care needs across multiple life domains.
Investigators
Location
Winship Cancer Institute